- falling asleep on someone’s chest
- wrapping your arms around each other
- synching heartbeats and breathing slowly
- falling asleep in big t-shirts and underwear
- forehead kissies and murmured affections
- MONSTER TRUCKS
Harry Potter au where Harry didn’t lose being a parsletongue and Albus buys a snake as a pet one year because snakes are cool and one day just walks in on Harry and the snake having a deep conversation
Albus is 17 and loses his virginity in his room and forgets the snake talks to his dad and when Harry gets home the snake is all like OH MY GOSH YOU’D NEVER GUESSSSSSSSSSSSSSSS WHAT HAPPENED
With chronic illness you always have to have an escape plan for any commitment, and it sucks because you don’t want people to know that cancelling plans is forever at the back of your mind, but it’s simply an unavoidable part of being chronically and unpredictably unwell. I think that’s why I have such a great fear of obligations, because with chronic illness it’s vital that you have a way out of things, and you feel physically and mentally trapped if you don’t.
Most of you are probably at least somewhat aware of Chiari and what it is since my brother has it and I’ve mentioned his struggles and his surgery multiple times before on here, but to give a brief overview:
Chiari (aka Arnold Chiari Malformation) is a condition wherein the brain/skull malforms and part of the brain grows out of the skull and into the spinal column, pressing on the spinal nerve. The symptoms look something like this:
But there are a lot more symptoms associated with it as well, these are just a few. Yay. Some examples I’m aware of would be light sensitivity, sensitivity to certain smells and/or sounds, constant migraines, vision problems, poor hand-eye co-ordination, dizziness, back pain, ringing in your ears, nausea, paralysis, etc. Basically it’s a whole lot of fun.
At the moment these is no cure for Chiari, just various treatments.It’s basically just down to pain medication and a surgery to relieve pressure/remove a small section of the brain that’s not fitting into the skull (my brother had to have a part of his skull and the top vertebrae of his spine removed also, and some people get in metal plates and the likes, it varies a bit from person to person and surgeon to surgeon). Sometimes multiple surgeries are necessary, and it is hereditary so a lot of the time you’ll see families with multiple children who have Chiari.
There are a few charities dedicated to research and looking for a potential cure (Conquer Chiari seems to be the one I hear about most) and donating to them would be a super awesome thing to do if you do have money to donate. There is also the Chiari Brain Freeze Challenge to raise awareness, I’ll be doing that myself and anyone else who wants to do it should definitely do so (the challenge is basically to spin around five times and drink a very cold drink very fast to give yourself a very temporary Chiari-like headache).
But doing anything at all to raise awareness is great. Chiari isn’t a very well-known condition. It doesn’t get huge amounts of support and funding. Most people have never heard of it until someone they know is diagnosed, and it seems to be something that is missed an awful lot when people are showing symptoms. Awareness is hugely important, and raising awareness isn’t an overly difficult thing to do. Whether you do the challenge, dye your hair purple, share a picture, reblog a tumblr post, tell one person you know about Chiari, anything you can think of.
September is Chiari Awareness Month. So raise awareness.